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Addressing Caregiver Burden: Program Development to Improve the Quality of Life of Caregivers of Cancer Survivors Public Deposited

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Wooley, Aubriel J. Addressing Caregiver Burden: Program Development to Improve the Quality of Life of Caregivers of Cancer Survivors. Polo, Katie.University of Indianapolis. 2019. https://uindy.hykucommons.org/concern/generic_works/3c06e703-d92c-460c-9113-1f719de50d72?locale=en

APA citation style

Wooley, Aubriel J. (2019). Addressing Caregiver Burden: Program Development to Improve the Quality of Life of Caregivers of Cancer Survivors. https://uindy.hykucommons.org/concern/generic_works/3c06e703-d92c-460c-9113-1f719de50d72?locale=en

Chicago citation style

Wooley, Aubriel J. Addressing Caregiver Burden: Program Development to Improve the Quality of Life of Caregivers of Cancer Survivors. University of Indianapolis. 2019. https://uindy.hykucommons.org/concern/generic_works/3c06e703-d92c-460c-9113-1f719de50d72?locale=en

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The purpose of this Doctoral Capstone Experience (DCE) was to create a one time, educational session, "Caring for those who Care," for caregivers of cancer survivors at the Indianapolis chapter of Cancer Support Community (CSC). CSC staff completed a self-created needs assessment survey and caregivers completed the Caregiver Quality of Life-Cancer (CQOL-C) and Zarit Burden Interview (ZBI) to determine current barriers encountered by caregivers. The DCE student utilized thematic analysis to analyze needs assessment results, evidence based literature, and interactions with CSC staff and caregivers to develop and implement "Caring for those who Care." Prior to beginning "Caring for those who Care," participants completed the CQOL-C, ZBI, and a self-developed pre-survey. Five participants, three caregivers and two CSC interns, attended the session, which covered an educational and discussion portion for four topic areas: self-care, stress management, fatigue management, and anticipatory grief. Immediately following the session, participants completed a self-developed post-survey to determine knowledge gained. Two weeks following the session, participants completed the CQOL-C and ZBI to determine changes in quality of life (QoL) and burden. Despite inconclusive data on improvements in QoL and burden due to environmental barriers fortwo of the three caregivers in attendance, results indicated an improvement for 100% of participants in knowledge gained and improvements in implementation of strategies and skills for fatigue and stress management, self-care, and anticipatory grief. Overall, results indicate "Caring for those who Care" was successful and would be beneficial to continue to offer for caregivers of CSC.

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